Meagan Tandy’s ALS Challenge
Saving water and donating!
Special skills: extensive Harry Potter knowledge, can watch an entire TV show in a week, knows words to every Disney song, can form abnormally strong attachments to fictional characters, Microsoft Word
So you mean, able to retain knowledge, has incredible focus and drive, excellent at processing media, remembers obscure details when needed, and has great skill at creating connections with individuals despite minimal interfacing?
And Microsoft Word?
i am 0% the person i was three years ago and i would probably get in a fight with 2011 me
Today’s top book news item:
Laura Ingalls Wilder’s rough memoir of frontier life, which served as the basis for her Little House on the Prairie series, will be published this fall as Pioneer Girl: The Annotated Autobiography. The Associated Press reports, “The not-safe-for-children tales include stark scenes of domestic abuse, love triangles gone awry and a man who lit himself on fire while drunk off whiskey,” adding, “Wilder and her daughter Rose Wilder Lane, herself a well-known author, tried and failed to get an edited version of the autobiography published throughout the early 1930s.” It will be published by the South Dakota State Historical Society Press.
on the ice bucket challenge
my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
It’s my mom’s birthday today. I hope she likes my card. I don’t really keep track so I just had to guess on her age…